What is Mitochondrial Disease?

Mitochondrial disease is an inherited chronic illness that can be present at birth or develop later in life. It causes debilitating physical, developmental, and cognitive disabilities with symptoms including poor growth; loss of muscle coordination; muscle weakness and pain; seizures; vision and/or hearing loss; gastrointestinal issues; learning disabilities; and organ failure. It is estimated that 1 in 4,000 people has Mito. It’s progressive and there is no cure.

World Mitochondrial Disease Awareness Week 2021

September 19 - September 25

Mitochondrial Disease Awareness Week is celebrated globally to educate and increase awareness about mitochondrial disease (MITO). The awareness week is celebrated annually during the third week of September. Most people have never heard of mitochondrial disease. Once considered rare, it is now thought to affect 1 in 5000 people, making it the second most commonly diagnosed, serious genetic disease after cystic fibrosis. Researchers have discovered links between mitochondrial dysfunction and other conditions including Alzheimer’s disease, Parkinson’s disease, diabetes, cardiac issues, and some cancers. Scientists believe that in focusing on mitochondrial dysfunction, they may be able to devise effective treatments and potential cures for MITO and help the millions of people who suffer from the above-mentioned diseases. During this week, affected individuals, their families, friends, co-workers, and fellow students join together to sponsor a variety of events to promote outreach and education about mitochondrial disease and the broader impact of mitochondrial dysfunction on human health. This year, Mitochondrial Disease Awareness Week will be held September 19 – 25, 2021 Every 30 minutes, a child is born who will develop a mitochondrial disorder or disease by the age of 10. Show your support by using the hashtags #greenformito #mitocation #mitoawarenessweek