Join Us in Commemorating World Duchenne Awareness Day: Breaking Barriers for a Brighter Future

Dear Friends and Dedicated Medical Professionals,

We extend our heartfelt invitation to each of you, our esteemed partners in the Rare or Neuromuscular Disease and Disability sector, to stand united in marking a significant day on our calendar – World Duchenne (DMD) Awareness Day on September 7th. We know that your commitment to this cause runs deep, and your support means the world to us.

The essence of this day is encapsulated in its theme – "Breaking Barriers." This year, as we celebrate the 10th International World Duchenne Awareness Day, we find inspiration in the remarkable journey of individuals who have shattered expectations and surmounted challenges. The strides we've made are evident in the fact that due to international consensus care and proactive medical efforts, we're living longer, enriched lives – breaking the constraints once associated with this condition.

It's our shared responsibility to cast light on these accomplishments and milestones and to redefine what's possible for those affected by Duchenne muscular dystrophy. By participating in this global initiative, we spotlight the resilience, achievements, and remarkable endeavors of individuals who've defied odds, pursued education, harnessed talents, and established themselves in diverse fields.

The journey of Breaking Barriers doesn't end here. We're also witnessing groundbreaking advancements in medical science. The recent FDA approval of the first one-time genetic therapy for young patients brings rays of hope to our community. Additionally, news of the world-first trial for infants with Duchenne muscular dystrophy heralds a new era of possibilities.

To amplify our message of unity and progress, we encourage you to join the conversation online using #WDAD2023. By sharing an existing date claim or crafting your announcement, you'll be contributing to the global awareness and support network that drives our mission forward. Together, we can dispel outdated narratives and embrace the fuller, richer lives that many are living today.

Your participation is an acknowledgment of our collective strength, resilience, and shared vision. Let's unite on September 7th, commemorating World Duchenne Awareness Day and pledging to continue Breaking Barriers for a brighter future.

For further information and resources, please visit https://www.worldduchenneday.org/. We are deeply grateful for your unwavering support.